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    Home / Instruments / Haemophilia age group-specific Quality of life questionnaire (QUAL HEMO)


    Haemophilia age group-specific Quality of life questionnaire (QUAL HEMO)

    [ Distributed by Mapi Research Trust
    Developed in 2003 ]

    Author(s)
    Baxter
    Mapi Values-France
    QUAL HEMO scientific committee
    Purpose
      Pathology:
    Congenital, hereditary, and neonatal diseases and abnormalities
    Hemic and lymphatic diseases

      Disease:
    Hemophilia

      Objective:
    To document HRQL throughout the lifetimes of haemophiliac patients

      Population for intended use:
    Adolescent
    Adult
    Pediatrics
    Characteristics
      Type of instrument:
    Health-Related Quality of Life - HRQL (incl. health status)

      Administration mode:
    Proxy-rated
    Self-administered

    [ All versions are self-administered. The parent version is completed by the parent from his/her observation of the child ]

      Number of items:
    Adult version: 53; Adolescent version: 77; Parent version: 35; Child version: 9

      Existence of database:
    No

      Recall/Observation period:
    Present time
     
    Language(s)
      Original language:
    French for France

      List of existing translations:
    The translations listed below may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study.

    This list of translations is subject to constant changes, therefore please check the status of translations with MAPI Research Trust / the developers / copyright holders / distributors

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    No translations
     


    Last update: September 2011
    Last update in collaboration with the author: November 2008


    Details of the questionnaire
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