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    Individualized Neuromuscular Quality of Life Questionnaire (INQoL©)

    [ Developed in 2005
    Distributed by Mapi Research Trust ]

    Author(s)
    Carr Alison J
    Rose Michael R
    Vincent Kelly A
    Purpose
      Pathology:
    Musculoskeletal diseases
    Nervous system diseases

      Disease:
    Muscular Diseases

    [ Adult muscle diseases both acquired or congenital including congenital myopathies, limb girdle muscular dystrophies, facioscapulohumeral muscular dystrophy, dystrophic and non-dystrophic myotonias and inflammatory myopathies ]

      Objective:
    To assess health-related quality of life of patient suffering from neuromuscular diseases.

      Population for intended use:
    Adult

    [ 16+ years ]
    Characteristics
      Type of instrument:
    Health-Related Quality of Life - HRQL (incl. health status)
    Signs and symptoms

    [ Symptom impact ]

      Administration mode:
    Self-administered

      Number of items:
    45

      Existence of database:
    Yes

      Recall/Observation period:
    At the moment
     
    Language(s)
      Original language:
    English for the UK

      List of existing translations:
    The translations listed below may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study.

    This list of translations is subject to constant changes, therefore please check the status of translations with MAPI Research Trust / the developers / copyright holders / distributors

    ------------------------------------------------------------------------------------------------------------------------------

    Dutch English for the USA German Italian


    Note: The author has selected Mapi Institute as exclusive linguistic validation company to ensure the production of harmonized and consistent language versions.
    For additional information on available translations of this instrument, or for a project involving new languages, please contact our Information Unit at contact@mapi-trust.org

     


    Last update: October 2010
    Last update in collaboration with the author: August 2007


    Details of the questionnaire
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