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    Individualized Neuromuscular Quality of Life Questionnaire (INQoL©)

    [ Distributed by Mapi Research Trust ]

    Author(s)
    Carr Alison J
    Rose Michael R
    Vincent Kelly A
    Purpose
      Pathology:
    Musculoskeletal diseases
    Nervous system diseases

      Disease:
    Muscular Diseases

    [ Adult muscle diseases both acquired or congenital including congenital myopathies, limb girdle muscular dystrophies, facioscapulohumeral muscular dystrophy, dystrophic and non-dystrophic myotonias and inflammatory myopathies ]

      Objective:
    To assess health-related quality of life of patient suffering from neuromuscular diseases.

      Population:
    Adult

    [ 16+ years ]
    Characteristics
      Type of instrument:
    Signs and symptoms
    Health-Related Quality of Life - HRQL (incl. health status)

    [ Symptom impact ]

      Mode of administration:
    Self-administered

      Number of items:
    45

      Existence of database:
    Yes

      Time recall:
    At the moment
     
    Language(s)
      Original language:
    English for the UK

      List of existing translations:
    (the translations may not have undergone a full linguistic validation process. Please check status of translations with Mapi Research Trust / the developers / copyright holders / distributors)

    Dutch English for the USA German Italian

     


    Last update: March 2009
    Last update in collaboration with the author: August 2007


    Details of the questionnaire
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