Home > Instruments > Lupus Patient-Reported Outcome tool (LupusPRO)

Lupus Patient-Reported Outcome tool (LupusPRO)

Developed in 2006
More information on the LupusPRO website


Jolly Meenakshi; Pickard Simon

©™ 2007, Rush University Medical Center and Board of Trustees of the University of Illinois at Chicago. All rights reserved


  • Pathology:

Immune system diseases

Skin and connective tissue diseases

  • Disease:

Lupus Erythematosus, Systemic

  • Objective:

To quantify effects of systemic lupus erythematosus (SLE) or its treatment on patient's quality of life

  • Population for intended use:




  • Type of instrument:

Health-Related Quality of Life - HRQL (incl. health status)


[ The LupusPRO has both HRQoL and non-HRQoL constructs ]

  • Administration mode:


  • Data collection mode:

Paper and pen

  • Number of items:

43 (version 1.7)

  • Recall/Observation period:

In the past 4 weeks


Bibliographic reference(s) of the original questionnaire

Jolly M, Pickard AS, Block JA, Kumar RB, Mikolaitis RA, Wilke CT, Rodby RA, ogg L, Sequeira W, Utset TO, Cash TF, Moldovan I, Katsaros E, Nicassio P, Ishimori ML, Kosinsky M, Merrill JT, Weisman MH, Wallace DJ. Disease-specific patient reported outcome tools for systemic lupus erythematosus. Semin Arthritis Rheum. 2012 Aug;42(1):56-65 (PubMed abstract)


  • Original language:

English for the USA

  • List of existing translations:

The translations listed below may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study.
This list of translations is subject to constant changes, therefore please check the status of translations with Mapi Research Trust / the developers / copyright holders / distributors.

LupusPRO 1.7

English for Canada
English for the Philippines
French for Canada
French for France
Turkish for Turkey

Note: Spanish version validated among Spanish-speaking SLE patients from USA, Mexico and South America

Last update: November 2013


For additional information on this instrument, please contact our Information Support Unit