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Home > Instruments > Lupus Patient-Reported Outcome tool (LupusPRO)

Lupus Patient-Reported Outcome tool (LupusPRO)

Developed in 2006
More information on the LupusPRO website

Author(s)

Jolly Meenakshi; Pickard Simon

©™ 2007, Rush University Medical Center and Board of Trustees of the University of Illinois at Chicago. All rights reserved

Purpose

  • Pathology:

Immune system diseases

Skin and connective tissue diseases

  • Disease:

Lupus Erythematosus, Systemic

  • Objective:

To quantify effects of systemic lupus erythematosus (SLE) or its treatment on patient's quality of life

  • Population for intended use:

Adult

 

Characteristics

  • Concept of interest:

Health-Related Quality of Life - HRQL (incl. health status)

Other

[ The LupusPRO has both HRQoL and non-HRQoL constructs ]

  • Administration mode:

Self-administered

  • Data collection mode:

Paper and pen

  • Type of Clinical Outcome Assessment (COA):

Patient-Reported Outcome (PRO)

  • Number of items:

43 (version 1.7)

  • Recall/Observation period:

In the past 4 weeks

 

Bibliographic reference(s) of the original questionnaire

Jolly M, Pickard AS, Block JA, Kumar RB, Mikolaitis RA, Wilke CT, Rodby RA, ogg L, Sequeira W, Utset TO, Cash TF, Moldovan I, Katsaros E, Nicassio P, Ishimori ML, Kosinsky M, Merrill JT, Weisman MH, Wallace DJ. Disease-specific patient reported outcome tools for systemic lupus erythematosus. Semin Arthritis Rheum. 2012 Aug;42(1):56-65 (PubMed abstract)

Language(s)

  • Original language:

English for the USA

  • List of existing translations:

Please refer to Translations tab or contact us

Last update: July 2014

  

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