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Haemophilia age group-specific Quality of life questionnaire (QUAL HEMO)

[ Distributed by Mapi Research Trust
Developed in 2003 ]

	Author(s)
Baxter Mapi Values-France QUAL HEMO scientific committee

Purpose

Pathology:

Congenital, hereditary, and neonatal diseases and abnormalities
Hemic and lymphatic diseases

Disease:

Hemophilia

Objective:

To document HRQL throughout the lifetimes of haemophiliac patients

Population:

Adolescent
Adult
Pediatrics

Characteristics

Type of instrument:

Health-Related Quality of Life - HRQL (incl. health status)

Mode of administration:

Proxy-rated
Self-administered

[ All versions are self-administered. The parent version is completed by the parent from his/her observation of the child ]

Number of items:

Adult version: 53; Adolescent version: 77; Parent version: 35; Child version: 9

Existence of database:

Time recall:

Present time

Language(s)

Original language:

French

List of existing translations:

(the translations may not have undergone a full linguistic validation process. Please check status of translations with Mapi Research Trust / the developers / copyright holders / distributors)

No translations

Last update: June 2009
Last update in collaboration with the author: November 2008