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Haemophilia age group-specific Quality of life questionnaire (QUAL HEMO)

[ Distributed by Mapi Research Trust
Developed in 2003 ]

	Author(s)
Baxter Mapi Values-France QUAL HEMO scientific committee

Purpose

Pathology:

Congenital, hereditary, and neonatal diseases and abnormalities
Hemic and lymphatic diseases

Disease:

Hemophilia

Objective:

To document HRQL throughout the lifetimes of haemophiliac patients

Population for intended use:

Adolescent
Adult
Pediatrics

Characteristics

Type of instrument:

Health-Related Quality of Life - HRQL (incl. health status)

Administration mode:

Proxy-rated
Self-administered

[ All versions are self-administered. The parent version is completed by the parent from his/her observation of the child ]

Number of items:

Adult version: 53; Adolescent version: 77; Parent version: 35; Child version: 9

Existence of database:

Recall/Observation period:

Present time

Language(s)

Original language:

French for France

List of existing translations:

The translations listed below may not have undergone a full linguistic validation process and may require further work to be suitable for use in a study.

This list of translations is subject to constant changes, therefore please check the status of translations with MAPI Research Trust / the developers / copyright holders / distributors

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No translations

Last update: September 2011
Last update in collaboration with the author: November 2008