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Patient-Reported Outcome Instruments |
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- American Academy of Pediatrics - Assessment Tools: See
- American Thoracic Society QoL Instruments: See
- Asthma Quality of Life Questionnaire (AQLQ): See
- American College of Allergy, Asthma & Immunology (ACAAI) - LIFE QUALITY: See
- A computer-assisted instrument to assess health-related quality of life in children and adolescents:See
- BASIS-32 Behavior and Symptom Identification Scale: See
- Brief Pain Inventory: See
- Consumer Assessment of Health Plans Study (CAHPS): See
- Children's Dermatology Life Quality Index (CDLQI): See
- Children with special health care needs: See
- Child Health Questionnaire (CHQ): See
- Child Health Care Quality Toolbox: See
- Core MOS measures of quality of life: See
- Healthy Days Measures (CDC HRQOL): See
- Dartmouth COOP Charts: See
- Dermatitis Family Impact (DFI): See
- Dermatology Life Quality Index (DLQI): See
- Expanded Prostate Cancer Index Composite (EPIC): See
- The Educational Testing Service (ETS) Test Collection database contains records on over 25,000 tests and research instruments: See
- EuroQol: See
- The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: See
- Generalized Perceived Self-Efficacy Scale: See
- Geriatric Depression Scale -- GDS: See
- Health Utilities Index (HUI): See
- Health-related quality of life measures from HIV Cost and Services Utilization Study: See
- HIV-PARSE Baseline Questionnaire: See
- Instruments' List from the Australian Centre of Quality of Life: See
- Lung Cancer Symptom Scale (LCSS): See
- Multidimensional Health Locus of Control (MHLC) ScalesSee
- MacNew Heart Disease Health-related Quality of Life Questionnaire (MacNew): See
- Memorial Pain Assessment Card: See
- Migraine Disability Assessment (MIDAS): See
- Mini Mental State Examination:See
- Multiple Sclerosis Quality of Life Inventory (MSQLI): See
- The MOS Social Support Survey: See
- Palliative care Outcome Scale (POS): See
- Patient Satisfaction Survey: See
- Patient Satisfaction Questionnaires (PSQ III) (PSQ-18): See
- Pediatric Quality of Life Inventory (PedsQL): See
- Pediatric asthma symptom scale: See
- Psoriasis Disability Index (PDI): See
- EORTC QLQ-C30: See
- Symptom Checklist-90-RevisedTM (SCL-90-R®): See
- Toolkit of Instruments to Measure End of Life Care (TIME): See
- RAND 36-Item Health Survey 1.0: See
- Wisconsin Quality of Life Index (W-QLI): See
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Major Organizations and Research Groups |
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- American Thoracic Society - Quality of Life Group: See
- Australian Centre on Quality of Life: See
- Australian Health Outcomes Collaboration: See
- Cancer and Leukemia Group B (CALGB): See
- Cardiff Research Consortium: See
- Centers for Disease Control and Prevention's Division of Adult and Community Health: See
- The Center for Gerontology & Health Care Research: See
- The Center for Health Quality, Outcomes and Economic Research: See
- Center for Health Outcomes and Policy Research, University of Pennsylvania: See
- Center for Health Outcomes, Policy, and Evaluation Studies, The Ohio State University (HOPES): See
- Centre for Health Program Evaluation (CHPE): See
- Center for Health Quality, Outcomes & Economic Research (CHQOER): See
- Center for Outcomes Research, University of Massachusetts: See
- Center for Pharmaceutical Outcomes Research, University of North Carolina at Chapel Hill School: See
- Centre for Health Economics, University of York: See
- Cochrane Collaboration: See
- COnnaissances et Décision en EConomie de la Santé (base CODECS): See
- Department of Health Care Policy Harvard Medical School: See
- Department of Health Services, University of Washington: See
- Department of Medicine, Clinical Epidemiology and Biostatistics, McMaster University: See
- Department of Palliative Care and Policy, London: See
- EORTC Quality of Life Study Group:
- Health Assessment Lab (HAL): See
- Health & Survey Research Unit: See
- The Health Measurement Research Group: See
- Health Psychology Research: See
- Health Services Research - UCLA: See
- Health Utilities Group (HUG): See
- Human Services Research Institute:See
- International Society for Quality of Life Research (ISOQOL): See
- International Society for Quality of Life Studies (ISQOLS): See
- International Society for Pharmacoeconomics and Outcomes Research (ISPOR): See
- Irish Clearing House on Health Outcomes: See
- Mapi Research Institute and Mapi Research Trust
- Medical Outcomes Trust: See
- Medical Technology& Practice Patterns Institute (MTPPI): See
- National Center for Health Outcome Development (includes the Patient-assessed Health Instruments database): See
- National Institute on Alcohol Abuse and Alcoholism (NIAAA): See
- New England Research Institutes, Inc. (NERI): See
- Pain Research Group (PRG): See
- Picker Institute Europe: See
- Plymouth Health-related Quality of Life Research Centre (PQOL): See
- Quality of Life Research Unit, University of Toronto: See
- QualityMetric: See
- RAND Health Program: See
- Société Française de Neurologie & GRECO (in French): See
- Stratis Health: See
- St Ann's Hospice: See
- UCSD Health Outcomes Assessment Program: See
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Major Journals for the number of articles on Patient Reported Outcomes |
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- British Medical Journal: See
- Health and Quality of Life Outcomes: See
- Journal of American Medical Association: See
- Medical Care: See
- Quality of Life Research: See
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Methodology |
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- CDC Health-Related Quality of Life: See
- Choosing a Health Outcome Measurement Instrument: See
- Focusing on Quality in a Changing Health Care System: See
- Measurement of Health-Related Quality of Life in Chronic Disease: See
- Quality of life compendium: See
- Quality Assessment (AHRQ): See
- The RAND Tools for Assessing Quality of Life and Health Status: See
- World Database of Happiness: See
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On-Line Newsletters |
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- ISOQOL: See
- Mapi Research Trust: See
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Instructions to Authors |
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- Health Services Research/Public Health Journals-Instructions to Authors: See
- Instructions to Authors in the Health Sciences: See
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Bibliographic Research |
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- NLM's Databases & Electronic Information Sources - free access to MEDLINE: See
- Library of Congress: See
Last update: March 2009
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Links